What We Do
When Connor was diagnosed with leukemia in May of 2005 our lives changed forever. The range of emotions experienced was incredible. Throughout his treatments and eventual bone marrow transplant, we felt everything including shock, fear, anger, and frustration. However, the emotion felt most strongly, and the one that lingers still to this day is the feeling of helplessness. There is little that you can do to comfort and reassure your child when the future is so uncertain. We know that others felt that sense of helplessness too. Our family and friends wanted to help and support us but didn't know how to do that. In 2006 The Connor Flanagan Foundation was founded. It was the way that we were able to turn that feeling of helplessness into something more. When Connor was in the hospital from May of 2005 through November, the one thing that he missed was "real" pizza. We decided then to sponsor Friday Night Pizza Parties on the oncology floor of Children's Hospital. Every Friday 25 pizzas from a local pizzeria are delivered to the resource room. Patients, families and staff get to enjoy pizza, salad, socialization and a few moments of normalcy. Read more...
After waiting for 16 long months, we are thrilled to announce that Connor had his double lung transplant on Friday, October 18, 2013. We were called on Friday morning at 7:30 a.m. After a day of tests and prepping for surgery, he went into the operating room at 4:30 p.m. It was a vey long night, but all went well during the 10 hour surgery. He spent just 3 weeks recovering at Boston Children's Hospital and is now home! Words cannot express our gratitude to the donor's family, the gifted doctors and surgeons, the nurses, and our family and friends who all have played a vital part in his care and recovery. Team Connor's motto, "Life is a Team Sport" is true now more than ever!
While he is doing extremely well, he still has a long road ahead. We are now focusing on getting him stronger and being diligent about infection and rejection. He is not able to go anywhere (except weekly doctor's appointments) for approximately 3 months. Likewise, no one is able to come into our house, for fear of germs/viruses. He has numerous medications that must be taken consistently to fight rejection of the new organs.
As always, Connor's resilience has been amazing. He is committed to do what needs to be done and to get better and heal. We have new-found optimism and are excited about what Connor's future holds thanks to the amazing gift that he was given!
Thank you for following Connor's story, and we appreciate your continued support.
If interested, please follow Connor's progress on Twitter:
or on Facebook at The Connor Flanagan Foundation
Thank you for your support!